What a shiner!

Sophia woke up with what looks like a very swollen black eye. This is normal, but no one told Sophia or Gary that so they were both wondering what was going on this morning. Her nurse wants Sophia to give the surgeon a hard time when he stops in and ask him why he punched her in the eye during surgery. :) The swelling from the surgery site travels down and pools into the eye which can cause swelling or even look like a bruise. Gary spent the night at the hospital again (thank you Gary!) and there are no seizures to report. He said they both got some sleep, but she woke up about every 30 min. wanting water (good for Sophia, bad for Gary.)

Sophia has eaten a bit more today. She only wants soft foods b/c she says it's hard to chew. One of the nurses was explaining that the surgery can aggravate the TMJ and make it difficult or painful to chew. She wanted plain mashed potatoes so Gary asked someone for that. After some time, I went to the cafeteria to buy some. I braved the lunch crowds and stood in 2 lines for a 95 cent ice cream scoop full of potatoes. On my way back, in the ICU, I noticed there was a container of mashed potatoes with Sophia's name on it just sitting on the counter. :) The story ends well because her potatoes had gravy on them. Or in them. The gravy was stirred in so I'm wondering if they tried to hide it when they realized their mistake. They have no idea who they are dealing with. Sophia will notice a single speck of pepper in her mac and cheese.

I asked the nurse why they don't just skip a dose of meds (which always results in a seizure w/in 24 hours with Sophia) as opposed to just halving it. One reason (which I figured was why) is that they don't want some one's seizures to get out of control b/c then they have to wait until they are stabilized before they will do surgery. The other reason is because, in order to get accurate, clear readings, the seizures need to be spaced apart several hours (preferably 12 hours.) They want to be able to see the brain during a seizure but also what goes on after to the point of being stabilized again.

I was really preoccupied at work and stressed out to the point of getting sick. I decided that working while your kid is in this physical state, just isn't a good idea. I don't feel good about doing therapy when my mind cannot be fully present. Thanks to my great boss for being so supportive about me leaving this morning. Thank you everyone for all the good wishes.

Gary told me Dr. McDonald only does surgeries on Tuesdays and Fridays, so we are likely looking at a long weekend in the hospital. Please send seizure-inducing thoughts our way. :)