Excited about a seizure!

Gary called this morning and Sophia had just had a seizure! This is only the 2nd time we've been excited about that. (The 1st time was during an EEG test.) It was 1 min. long, so Sophia was really miserable afterward. The longest seizure she's had in ages has been about 30 seconds. Dr. Constantino told Gary that she got really good data from the seizure, so we are very pleased about that. She said after Sophia has another seizure, then we will go ahead and schedule the surgery.

Yesterday evening was rough. Sophia's catheter kept leaking so they eventually had to put in a new one. It was challenging for the nurse because they don't have children's sizes readily available, so they had to order from the ER. They couldn't get one as small as the one she already had, so that was difficult. Also, the youngest patient they've had in this unit is 17, so they are not used to working with small anatomy. Sophia was such a trooper and so very brave! Her nurse was outstanding, she's our favorite night nurse. Early this morning, Sophia woke up to a soaking bed. The nurse today (the same day nurse as yesterday, who is also fabulous) has decided that it's a positional thing. Meaning, unless the tube is in just the right position, it won't drain the way it's supposed to. So she checks it often to make sure it's draining properly. I really hope that is taken care of. Poor Sophia!

Gary spent the night at the hospital again and I slept at home and dreamed about Sophia. I slept solid for over 8 hours so I'm feeling great. Chris and I woke up to over a foot of snow. Our tree by the road lost a huge branch yesterday due to the heavy, wet snow. Somehow  it ended up in front of half of our driveway during the night. Chris will probably be tackling that with a chainsaw while I'm cozy hanging out with Sophia.

Sophia had visitors today and she was very happy about that. My dad was there. My sister and her husband (Valeries and Brandon) are in town from Logan and they came to visit. I know that really brightened up her day and made the time pass more quickly. We have had several people planning on visiting but can't make it due to illness. We appreciate the thoughtfulness and she will likely be here until Wed. or Thurs. of next week, so there may be still be time to recover and visit. She will be at home for a few weeks recovering and I'm sure that will get lonely and boring, so visits at home would be nice as well.